In April 2024, Watford residents Darrah O’Sullivan, 28, and her fiancé, Vince Greenaway, 30, welcomed their twin daughters, Maeve and Orla. The twins were born at 36 weeks, and everything seemed normal at first.
However, a pediatrician noticed something unusual—Maeve had not opened her eyes. The next day, doctors diagnosed her with bilateral anophthalmia, a rare condition where both eyes are missing. This condition affects around one in 100,000 infants.
The twins are now 10 months old.
Bilateral anophthalmia can be caused by genetic changes, certain medications during pregnancy, or environmental factors. In many cases, the exact cause is unknown. Currently, there is no treatment to restore vision or create new eyes. However, early medical support can help with development.
Despite the diagnosis, Maeve is otherwise healthy. Her mother, Darrah, describes her as a “beautiful, happy, thriving little girl.” To help her eye sockets develop properly, Maeve will receive conformers—plastic shells that encourage growth. As she gets older, she will be fitted with prosthetic eyes.
The family is adjusting to their new reality.
Darrah and Vince have decided that Maeve’s condition will never be a sensitive topic in their home. They plan to learn braille together so it becomes a natural part of their daily life. They are committed to making sure Maeve can do anything she wants to do.
They believe her condition will not limit her future.
To raise awareness about bilateral anophthalmia, Vince and Darrah’s sisters, Maddie and Chloe, will participate in the 2025 London Marathon on April 27. Their goal is to raise funds for charities that support individuals with the condition.
Maeve’s journey is just beginning, and her family is determined to support her every step of the way.