The human body can adapt in incredible ways, even in rare conditions. Tessa Evans’ story is an example of resilience and medical progress. Born without a nose on Valentine’s Day in 2013, Tessa has faced unique challenges, but her journey has also led to medical advancements and inspired many.
Tessa was diagnosed with Bosma arhinia microphthalmia syndrome, a rare condition affecting the development of the nose, eyes, and puberty. It can also impact brain structure. Only about 100 cases have been recorded worldwide. The condition was first documented in Vietnam in 1981, though it may have existed earlier. Today, Tessa is one of the few people with this diagnosis.
Her parents, Grainne and Nathan Evans from Northern Ireland, had no warning during pregnancy that their daughter would be born without a nose. They were shocked at first but quickly accepted her condition and looked for ways to improve her quality of life.
At just two weeks old, Tessa had her first surgery to receive a tracheostomy tube. This helped her breathe and eat more easily. By age two, she became the youngest person to receive a cosmetic nasal implant. Advances like 3D printing and medical tattoo artistry will allow her to have a more defined nasal structure as she grows. Her parents hope this will reduce the need for future surgeries.
Living without a nose also means Tessa does not have a sense of smell. This makes it harder for her to detect dangers like smoke or spoiled food. Her family stays alert to keep her safe, emphasizing the importance of support and awareness for rare conditions.
Tessa’s journey has helped others with similar conditions. Inspired by her experience, another child in the UK has undergone similar treatments. Her parents share updates about her life on their Facebook page, “Tessa; Born Extraordinary,” which has nearly 10,000 followers.
Despite the challenges, Tessa’s story highlights resilience and medical innovation. Her journey continues to inspire progress and encourage hope for others facing similar conditions.