Tessa Evans’ story is an inspiring example of resilience and medical progress. Born on Valentine’s Day in 2013, Tessa was diagnosed with Bosma arhinia microphthalmia syndrome, a rare condition that affects the development of the nose, eyes, and sometimes the brain. This condition is so rare that fewer than 100 cases have been reported worldwide. Tessa’s story has touched many, showing the power of family support and innovative medical treatments.
When Tessa was born, her parents, Grainne and Nathan Evans, were caught off guard as there were no signs during pregnancy. Despite the shock, the couple decided to embrace their daughter’s uniqueness and find solutions that could help improve her quality of life. Tessa became the youngest patient to receive a cosmetic nasal implant at age two, marking a major milestone in her medical journey.
At just two weeks old, Tessa had her first surgery to receive a tracheostomy tube, which helped her breathe and eat more easily. Thanks to advancements in 3D printing and medical tattoo artistry, Tessa’s family hopes these treatments will allow for a more permanent nasal structure as she grows, minimizing the need for future surgeries.
While Tessa’s condition and treatments have greatly improved her appearance, challenges remain. Without a sense of smell, she lacks the ability to detect potential dangers like fires or spoiled food. Her parents continue to stay vigilant to ensure her safety and well-being.
Tessa’s bravery and her parents’ commitment have inspired others facing similar challenges. In the UK, a child has undergone similar treatments, encouraged by Tessa’s journey. Through her determination and the support of her family, Tessa has become a symbol of hope, proving that with the right care and love, remarkable things are possible.