When Patricia Williams and her husband Dale welcomed their son Redd in 2012, they had no idea of the challenges their family would face because of their son’s condition. Redd was born with very white hair and pale skin, a result of Oculocutaneous Albinism Type 1 (OCA1), a rare condition that affects about 1 in 17,000 people worldwide. This condition impacts melanin production, causing light skin, white hair, and vision problems.
Redd’s first photos soon went viral—but not for the right reasons. His pictures were quickly turned into memes, leading to unwanted attention. Patricia and Dale, though hurt, chose to use this negative experience to educate others about albinism and raise awareness. Their older son, Gage, became a protector for Redd, helping him through tough moments at school.
Redd’s condition was diagnosed early. When Patricia noticed his white hair and side-to-side eye movement, she sought medical advice. After visits to optometrists and genetic specialists, Redd was diagnosed with OCA1, which also affected his vision. Although Patricia and Dale had never encountered albinism in their family, they quickly accepted that this condition would be part of Redd’s life.
As Redd grew, he faced teasing from classmates. However, Gage was there to protect him. When Rockwell, Redd’s younger brother, was born with the same condition, the family knew they would face similar challenges. As Rockwell’s baby pictures spread online, they too were made into memes. While initially upset, the family decided to focus on educating others instead of trying to stop the viral images.
Patricia began sharing their experiences on social media, educating people about albinism and its effects. Her advocacy work gained a following, and over time, many people began to understand and support their cause. Redd later had eye surgery to improve his vision, which helped him transition to a public school where he was accepted for who he was.
Patricia’s efforts to raise awareness have helped create a more accepting world for her sons. Today, both Redd and Rockwell are happy and thriving, surrounded by people who celebrate their differences.